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When we say stares we mean an array of different looks.
Some are pity stares, some are curious and some are just downright rude. There is still a lot of work to do to make this world more wheelchair friendly.
Patients with SMA are generally grouped into one of four types (I, II, III, IV) based on their highest level of motor function.
The most common form, SMA type I, causes death by two years of age.
The only way to find out if you are a carrier is to have genetic carrier testing.
Most people who learn they are carriers are healthy and have no known history of the condition in their family.
Knowing about the health of the baby can help guide the medical management of the pregnancy, and could also give the family critical time to prepare—physically, financially, and emotionally—for the birth of a child with extra needs.
All spinal cord injuries and people in chairs are different. Each injury level or disease is as unique as each individual person and story. Next time you go for a walk, bike ride, or drive, take a look around you.
If you are a carrier, it is important to find out if your partner is also a carrier.
If you and your partner are BOTH carriers, then you are at risk of conceiving a child who is affected with the disorder.
A patient who receives a negative test result still has a residual risk of being a carrier.
If you are new to the world of wheelchairs your life has probably been filled with new experiences and new information.